I am at a conference at the moment and do not have access to all of my files, but the UK has done extensive research on this topic and has adopted many practices for the cancer community groups as well as inclusion of their cancer populations (individuals). As a matter of interest there was a recent publication in ovarian cancer where a hospital procedure was changed after patient/community consultations. I also am not sure if the abstracts from the November BC conference are still on line, but the conference can be found by googling "Where's the Patients' Voice in Health Professional Education? BC.. The abstracts will lead you to the research/programs which might be useful.
Sandi
> 
> From: Jarrod Gunn-Mcquillan <[log in to unmask]>
> Date: 2006/03/22 Wed PM 03:58:13 EST
> To: [log in to unmask]
> Subject: Re: [CLICK4HP] tools to evaluate participation in community groups
> 
> I would love to see what you gather, Elizabeth!
> 
> ~Jarrod
> Northwestern Health Unit
> 260 Front Street
> Box 539
> Emo, ON
> P0W 1E0
> Tel. (807) 482-3704
> Fax (807) 482-1678
> 
> -----Original Message-----
> From: Health Promotion on the Internet [mailto:[log in to unmask]]On
> Behalf Of Elizabeth Jackson
> Sent: Wednesday, March 22, 2006 2:32 PM
> To: [log in to unmask]
> Subject: tools to evaluate participation in community groups
> 
> 
> We are involved in an evaluation project looking at community development
> work aimed at increasing civic participation.  We're looking for some
> simple, low cost, participatory tools to measure the quality of
> participation during coalition meetings or other community group meetings.
> 
> Also, we have looked at the work by Susan B. Rifkin et al about measuring
> indicators of  participation in primary health care  and we're wondering if
> there is anyone on the list serve who has experience using her model and if
> you'd be able to share your experiences with us.
> 
> Thanks.
> Liz Jackson, M.A.
> Health Policy and Evaluation Consultant
> Ottawa, Canada
> 
> [log in to unmask]
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Send the following text: unsubscribe click4hp to: [log in to unmask] if you wish to unsubscribe. Go to http://listserv.yorku.ca/archives/click4hp.html to view CLICK4HP archives or manage your subscription (you will have to create a password).