**Please forward widely - excuse any cross-postings!**
Dear SDOH colleagues,
Community-Campus Partnerships for Health (CCPH) and the Tuskegee University
National Center for Bioethics in Research and Health Care (the Bioethics
Center) invite you to participate in their jointly sponsored Educational
Conference Call Series on Institutional Review Boards (IRBs) and Ethical Issues
in Research.
**Space is available for the May 7th and May 24th IRB Calls, which explore the
world beyond the university IRB to gain an understanding of the supplementary
and alternative models for human protections. These models include community
advisory boards, community research advisory boards, and independent community
IRBs. Space is also available for the final call in the series on June 25 on
changing IRB policy and practice to better protect communities. Scroll down to
register for these free calls today!**
The series is intended to increase understanding of the role of IRBs and other
mechanisms for assuring that human subjects research is ethical and appropriate
- both at individual and community levels. The aim of the series is to provide
a comprehensive understanding of the options and tools necessary for
communities to determine the approach that is best for them. The series will
also inform the development of future initiatives undertaken by CCPH and the
Bioethics Center on IRBs and ethical issues in community-campus partnerships.
The conference calls are free, but the number of incoming lines is limited. To
maximize participation, we encourage gathering colleagues to dial-in together
using one phone line with speaker phone capabilities. Those completing the
online form will be notified as to whether their registration is confirmed, and
sent instructions for dialing into the call. Handouts and digital audiofiles
will be posted on the CCPH website at www.ccph.info shortly after each call
takes place. To learn more about the series, visit
http://depts.washington.edu/ccph/irbcalls.html
If you have comments and suggestions on the call series, including ideas for
additional call topics, please contact the call series organizers CCPH Program
Director Kristine Wong ([log in to unmask]) or CCPH Graduate Research
Assistant Jessica Grignon ([log in to unmask]).
Be sure to check out resources and presentations from recent calls!
Call #1 entitled "What is an Institutional Review Board (IRB) and What Purpose
Does it Serve?" took place on February 14, 2007. An audiofile of the call and
other resources are available at:
http://depts.washington.edu/ccph/pastpresentations.html
Call #2 entitled "Highlighting the Importance of the Non-Affiliated (Community)
IRB Member" took place on March 14, 2007. An audiofile of the call and other
resources are available at:
http://depts.washington.edu/ccph/pastpresentations.html
Call #3 entitled "Community-Based Participatory Research (CBPR) Proposals and
the Human Subjects Review Process: Methods for Working with University IRBs"
took place on April 18, 2007. An audiofile of the call and other resources will
be posted shortly at: http://depts.washington.edu/ccph/pastpresentations.html
Sign up for future calls in the series!
Call #4 – Monday, May 7, 2007, 12:00 – 1:30 p.m. Pacific Standard Time
Beyond the University IRB: Understanding Alternative Models for Human
Protection, Part I: Supplementing the IRB for Community Protection with a
Community Advisory Board
Moderator:
*Vanessa Northington Gamble, Director, Tuskegee University National Center for
Bioethics in Research and Health Care
Speakers:
*Otsehtokon Alex M. McComber (Mohawk), Former Training Coordinator, Kahnawake
Schools Diabetes Prevention Project, Kahnawake Mohawk Territory, Quebec, Canada
*Stephen B. Thomas, Professor of Community Health and Social Justice,
University of Pittsburgh Graduate School of Public Health, Pittsburgh, PA
*Vickie Ybarra, Director of Outreach and Services, Yakima Valley Farmworkers
Clinic, Toppenish, WA
This call will cover:
*Introduction to the wide range of human protections options developed by
community-based organizations and CBPR partnerships--from Community Advisory
Boards that supplement University IRBs to independent Community Review Boards
*Examples of Community Advisory Boards that have been created for additional
protections for the community, but work collaboratively with University IRBs
*Why and how these entities were created *How these entities function and what
purposes they serve *How and when to develop a Community Advisory Board
To register for this call, complete the online registration form at:
https://catalysttools.washington.edu/survey/ccphuw/34511
Call #5 - May 24, 2007, from 12:00 - 1:30 p.m. Pacific Standard Time
Beyond the University IRB: Understanding Alternative Models for Human
Protections, Part II: Creating an Independent Community IRB — When is it Right
for You?
Moderator:
*Vanessa Northington Gamble, Director, Tuskegee University National Center for
Bioethics in Research and Health Care
Speakers:
*Sheila Beckham, Preventive Health Services Director, Waianae Coast
Comprehensive Health Center, Waianae, Hawaii *Bill Freeman, Director of Tribal
Community Health Programs & Human Protections Administrator, Northwest Indian
College, Bellingham, Washington *Jacqueline Tran, Program Manager, Orange
County Asian and Pacific Islander Community Alliance, Garden Grove, California
*Eric Wat, Data Manager, Special Services for Groups, Los Angeles, California
This call will cover:
*Review of the wide range of human protections options developed by
community-based organizations and CBPR partnerships – from Community Advisory
Boards that supplement University IRBs to independent Community Review Boards
*Examples of independent Community IRBs that have been created to serve the
needs of their communities *Why and how these entities were created *How these
entities function and what purposes they serve *How and when to develop an
independent Community Review Board *Community ownership of data and benefits
from research – how does this differ between Community IRBs and University
IRBs?
To register for this call, complete the online registration form at:
https://catalysttools.washington.edu/survey/ccphuw/33263
Call #6 - Monday, June 25, 2007, 12:00 - 1:30 p.m. Pacific Standard Time
IRB Reform: Changing Policy and Practice to Protect Communities
Speakers: *Syed Ahmed, Director of the Center for Healthy Communities (CHC) &
Professor of Family and Community Medicine, Medical College of Wisconsin,
Milwaukee, WI *Sarah Beversdorf, Rural Health Liaison for the Healthier
Wisconsin Partnership Program, Medical College of Wisconsin, Milwaukee,
Wisconsin *Sarah Flicker, Assistant Professor, York University, Toronto,
Ontario, Canada *Robb Travers, Scientist and Director of Community-Based
Research, Ontario HIV Treatment Network, Toronto, Ontario, Canada *Nancy Shore,
Assistant Professor at the University of New England School of Social Work,
Portland, Maine
This call will cover:
*Findings from recent studies of IRBs and CBPR
*Do IRB policies and practices adequately protect communities? How should they
be changed? *Ideas and recommendations for how IRBs could better protect
communities
To register for this call, complete the online registration form at:
https://catalysttools.washington.edu/survey/ccphuw/33264
ABOUT THE CO-SPONSORING ORGANIZATIONS
Community-Campus Partnerships for Health and the Tuskegee University National
Center for Bioethics in Research and Health Care have established a partnership
to advance their shared goal of meaningfully involving communities in decisions
made about every aspect of research. In particular, the partnership is focused
on engaging Historically Black Colleges and Universities and the communities
they serve. The first outcome of the partnership is a jointly sponsored
Educational Conference Call Series on Institutional Review Boards and Ethical
Issues in Research.
Community-Campus Partnerships for Health promotes health (broadly defined)
through partnerships between communities and higher educational institutions.
Founded in 1996, CCPH is a growing network of over 1,300 communities and
campuses across North America and increasingly the world that are collaborating
to promote health through service-learning, community-based participatory
research, broad-based coalitions and other partnership strategies. What ties
CCPH members together is their commitment to social justice and their passion
for the power of partnerships to transform communities and academe. CCPH
advances its mission by disseminating information, providing training and
technical assistance, conducting research and evaluations, developing and
influencing policies, and building coalitions. Learn more about CCPH at
www.ccph.info
The Tuskegee University National Center for Bioethics in Research and Health
Care, promotes racial and ethnic diversity in the field of bioethics and in
public debates about bioethical issues. Established in 1999, its mission is to
promote equity and justice in health and health care. The Bioethics Center is
the nation's first bioethics center dedicated to addressing bioethical issues
of importance to African Americans and other underserved populations. It is
also the only bioethics center at a Historically Black College and University.
The Bioethics Center carries out its mission by conducting education and
training programs, fostering respectful community partnerships, advancing
interdisciplinary research, and advocating public policies that improve the
health and health care of all Americans, particularly the underserved. Learn
more about the Bioethics Center at
http://www.tuskegee.edu/Global/category.asp?C=35026
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