SDOH Archives

Social Determinants of Health

SDOH@YORKU.CA

Options: Use Forum View

Use Monospaced Font
Show Text Part by Default
Show All Mail Headers

Message: [<< First] [< Prev] [Next >] [Last >>]
Topic: [<< First] [< Prev] [Next >] [Last >>]
Author: [<< First] [< Prev] [Next >] [Last >>]

Print Reply
Subject:
From:
D Bonnenfant <[log in to unmask]>
Reply To:
Social Determinants of Health <[log in to unmask]>
Date:
Wed, 8 Mar 2006 10:47:01 -0500
Content-Type:
text/plain
Parts/Attachments:
text/plain (58 lines)
I can only speak from personal experience.

My dear sweet partner had gliblastoma multiform (brain cancer).
terrible disease for my partner.
terrible challenge for caregivers

the physicians we saw were capable (I think)
no holistic approach
no coordinated care
no 'education' (the oncologist told me the name of the cancer and to
'google' it for more info)
very little compassion if any. (the nurse told me over the phone "there's
nothing can be done anyway".)
impatience and curt responses in the emergency wards.
no hope offered - in fact any 'ray' of hope that I had been able to find was
squashed.
no response and barriers when I showed them data/research from 'the' brain
tumour centres around the world and requested other treatments be at least
considered. (as if: there there little girl - just do as your told and don't
bother us with anything you don't know anyting about.)

we are 20 minutes to a regional cancer centre in Ottawa.
we were refused there.
where did we have to go? - Sherbrooke 5 hours drive away and Montreal - 2
hours away.

help and hope came from friends and family.
compassion and care - same.
any help and education or change in care came from my searching and asking
and pushing and pushing and pushing......
At the end of the road: palliative care staff in a palliative care home were
phenomenal.

D Bonnenfant- partner of dear sweet wonderful Normand Breton.
Chelsea, Quebec

-------------------
Problems/Questions? Send it to Listserv owner: [log in to unmask]


To unsubscribe, send the following message in the text section -- NOT the subject header --  to [log in to unmask]
SIGNOFF SDOH

DO NOT SEND IT BY HITTING THE REPLY BUTTON. THIS SENDS THE MESSAGE TO THE ENTIRE LISTSERV AND STILL DOES NOT REMOVE YOU.

To subscribe to the SDOH list, send the following message to [log in to unmask] in the text section, NOT in the subject header.
SUBSCRIBE SDOH yourfirstname yourlastname

To post a message to all 1000+ subscribers, send it to [log in to unmask]
Include in the Subject, its content, and location and date, if relevant.

For a list of SDOH members, send a request to [log in to unmask]

To receive messages only once a day, send the following message to [log in to unmask]
SET SDOH DIGEST

To view the SDOH archives, go to: https://listserv.yorku.ca/archives/sdoh.html

ATOM RSS1 RSS2