My original response was a bit different - this is the revision for
'public' consumption. Sandi
article + commentaries - http://www.medscape.com/viewarticle/569156
Subject: Television program for Healthcare Providers and Patients
As a cancer survivor, several years ago, I approached a healthcare
provider on this very issue. My altruistic vision of this program was to
encourage a joint effort between healthcare professionals and cancers
survivours*. It was with a vision of open, public and yes, enthusiastic
dialogue. Extensive research has been published over the years
reflecting on the mechanisms of how exactly to include
survivors/patients/families (consumers). What better way to fast forward
these discussions and move into public participation and action. It is
still my opinion that the time has come for this venue, however, today's
world requires a fully inclusive approach. Education alone is
insufficient to address the unmet needs in our communities - all of our
communities. To succeed this program requires an inclusive and
interactive venue especially in light of today's cyberspace and
e-community networks. The sad truth is that as an individual, the power
to make this program happen was beyond my reach. Should there be
sufficient power and influence funding would not be an issue.
The time has come for an inclusive, public program and not specific to
the U.S.. Our patient communities extend beyond specific geographics,
but in fact exist in a global context. The proof is led by e-communities
which successfully transcend bias as to colour, socioeconomic status,
age or religion. One such community is ACOR - Association of Cancer
Online Resources (http://www.acor.org). You may also wish to reference
the recent study done and available through the website: "How Cancer
Survivors Provide Support on Cancer-Related Internet Mailing Lists", as
well as, the e-patients white paper.
As a past member of the WHO Patient for Patient Safety group, and
understanding the structure of WHO, this would be an excellent program
for WHO to initiate. The structure through WHO already exists.
Sandi Pniauskas
Note: survivour in the broader sense to include family/friend caregivers
Lundberg, George wrote: > Hi Sandi, > Thanks for writing. Would you like
us to consider your good letter for > possible publication? > Best
wishes, > george > > George D. Lundberg, MD > Editor in Chief, The
Medscape Journal of Medicine and eMedicine. > The Original Open Access
General Medical Journal and Comprehensive > Clinical Textbook.
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