Erika, in addition to the tool there couple of publications.
Healthcare Quarterly, 12(2) 2009: 50-55
"Ethics? But It's Only Quality Improvement!"
Don Flaming, Linda Barrett-Smith, Norma Brown and Judy Corcoran
Many people assume that quality improvement (QI) projects pose no
ethical issues in relation to participants or their rights. However,
members of the Alberta Research Ethics Community Consensus Initiative
(ARECCI) submit that all projects that generate knowledge, including QI
projects, can create risks to participants that need to be identified,
assessed and addressed in the context of the kind of project. The
possibility of risk raises the question of ethical conduct in QI
projects. Ethical considerations, such as the rights to respect and
privacy, protection from harm and voluntary consent, may apply to QI
projects, even if the participants are not regarded as research
subjects. In this article, we use a case example to illustrate potential
ethical issues raised by a QI project, and argue for an ethics review
approach that is distinct from that used with research projects. We
propose six considerations with guidelines to help assess (and
ultimately minimize and mitigate) the risk for participants in QI
projects and assist in the appropriate ethical management of these
projects.
Innovations in the Ethical Review of Health-Related Quality Improvement
and Research: The Alberta Research Ethics Community Consensus Initiative
(ARECCI)
Brad Hagen, Maeve O'Beirne, Sunil Desai, Michael Stingl, Cathy Anne
Pachnowski and Sarah Hayward
Abstract:
The Alberta Research Ethics Community Consensus Initiative (ARECCI) is a
unique Canadian initiative that addresses the ethical oversight of two
main categories of health-related investigative projects: research and
quality improvement (including quality assurance and program
evaluation). ARECCI was formed as a result of discussions arising from
health regions, health researchers and the Alberta Committee of Research
Ethics Boards (REBs) Chairs, who all desired a clearer and more
consistent approach to the ethical oversight of investigative health
projects. The Alberta Heritage Foundation for Medical Research (AHFMR)
established and supported ARECCI in 2003 in response to this need.
ARECCI is unique in its ongoing efforts to bring together a wide-ranging
group of stakeholders to develop consensus on a set of pragmatic
recommendations and tools for the ethical review of research and quality
improvement, and to get extensive consultation on those recommendations.
This paper presents the ARECCI context and process, recommendations and
tools produced by ARECCI and lessons learned from the ongoing ARECCI
process.
-----Original Message-----
From: Health Promotion on the Internet [mailto:[log in to unmask]] On
Behalf Of Mary Jane Yates
Sent: Wednesday, June 03, 2009 9:35 AM
To: [log in to unmask]
Subject: Re: Call for literature on ethics, research ethics & CBR
Hi Erika:
Hopefully you are aware of the tool that has already been developed in
Alberta related to this topic. Please check out:
http://www.ahfmr.ab.ca/arecci/areccitools.php
Cheers,
Mary Jane Yates, BScN, MSc
A/ Canadian Public Health Service Regional Coordinator
Public Health Agency of Canada (PHAC), Alberta/NWTRegion
Suite 815 Canada Place, 9700 Jasper Avenue
Edmonton, AB T5J 4C3
Tel.: 780-495-5113
Fax: 780-495-7842
Erika Khandor
<erika.khandor@UT
ORONTO.CA>
To
Sent by: Health [log in to unmask]
Promotion on the
cc
Internet
<[log in to unmask]
Subject
A> Call for literature on ethics,
research ethics & CBR
2009-06-03 08:12
AM
Please respond to
Health Promotion
on the Internet
<[log in to unmask]
A>
Request for Articles and Resources to Inform a Literature Review:
Needs Assessment and Feasibility Study for Community-Based Research
About the Research:
There is a growing interest in the area of community based research
(CBR)* both in and beyond academia. While academics are required by
their institutions and funders to submit their research proposals to a
rigorous ethics review process, those outside of academia have no
ethics review requirements except as required by certain funders.
Furthermore, research in Canada is increasingly being conducted
outside of academia. More and more of community based research is
being conducted by independent researchers, private consulting firms,
government departments and non governmental organizations. CBR covers
a range of research typologies including, needs assessments, program
evaluations, policy research, and other forms of applied research.
Purpose of Research:
The Wellesley Institute and the Centre for Community-Based Research in
Waterloo are collaborating to explore and clarify the need for a
community based research ethics process in Waterloo Region, Toronto
and beyond, by identifying and understanding issues and concerns from
multiple stakeholder perspectives (peer researchers, community
agencies (NGO?s), academics, community institutions, government and
funders) and then to determine an appropriate and feasible response
that will facilitate ethically sound community based research.
About the Request:
As part of the needs assessment and feasibility study we are
conducting a literature review looking for published and unpublished
articles and resources that address and explore the issues of ethics,
research ethics board and community based research.
If you have an article or resource that we should be aware of as part
of this literature review for please email Tekla Hendrickson at
[log in to unmask]
Please email your articles and resources by June 26th at the latest.
Thank you in advance for everyone?s assistance.
*************************
*The Steering Committee will define CBR as research that strives to be:
Community situated ? begins with research topics of practical
relevance to the community (as opposed to individual scholars) and is
carried out in community settings.
Collaborative ? community members and researchers equitably share
control of the research agenda through active and reciprocal
involvement in the research design, implementation and dissemination.
Action-oriented ? the process and results are useful to community
members in making positive social change and to promote social equity.
To manage subscriptions/passwords, or view archives, go to
http://listserv.yorku.ca/archives/click4hp.html . [log in to unmask] is
run
in collaboration with Health Nexus:
http://www.healthnexus.ca/index_eng.php
To manage subscriptions/passwords, or view archives, go to
http://listserv.yorku.ca/archives/click4hp.html . [log in to unmask] is
run in collaboration with Health Nexus:
http://www.healthnexus.ca/index_eng.php
To manage subscriptions/passwords, or view archives, go to http://listserv.yorku.ca/archives/click4hp.html . [log in to unmask] is run in collaboration with Health Nexus: http://www.healthnexus.ca/index_eng.php
|
