Pendlebury, PM Rothwell and A Algra et al., (2004).  Underfunding of stroke
research: a Europe-wide problem, Stroke 35, 2368-2371

The social movement literature-- Brown, Zavestoski, McCormick Mayer,
Morello-Frosch & Altman, 2004 Embodied Health Movement: New Approaches to
social movements in Health. Sociology of Health and Illness 26(1), 50-80
Rabeharisoa, (2006) From representation to mediation: the shaping of
collective mobilization on muscular dystrophy in France. Social Science and
Medicin, 62 564-576.
Epstein, S. (1995). The construction of lay expertise: AIDS activism and the
forging of credibility in the reform of clinical trials. Science Technology
& Human Values, 20, 408-437.
Breast Cancer Advocacy-- Kolker, E. S. (2004). Framing as a cultural
resource in health social movements: funding activism and the breast cancer
movement in the US 1990- 1993. Sociology of Health and Illness, 26(6),
820-844.
Or perhaps Dickersin, Braun, Mead, Millikan, Wu et al. (2001)Development and
implementation of a science training course for breast cancer activists:
Project LEAD
Also
Landzelius, K., & Dumit, J. (2006). Introduction: patient organization
movements and new metamorphoses in patienthood. Social Science & Medicine,
62, 529-537.

There is also some research that compares advocacy to National Institutes of
Health Research Funding for each disease. 
Is this what you are thinking of?
Sincerely, Sharon 
 

To UNSUBSCRIBE send to: [log in to unmask] the following phrase "unsubscribe click4hp" as unquoted text. To view archives or manage your subscription (and create a password) go to http://listserv.yorku.ca/archives/click4hp.html