Sorry for this shameless promotion of this event, however, like Chrystal 
and others no one is willing to extend sponsorship, so the survivours 
are funding these events personally. Pdf files (flyers/announcements) 
are available if you contact me.
Having had more than my personal share of tragedy, I have been extremely 
fortunate to find survivours (not only specific to cancer but other 
events) of individuals who indeed do want to talk openly about the 
lingering effects of the losses and suffering which we either experience 
personally or through others. For the most part, my experience has been 
that the most effective communication remains at the grassroots level, 
as in 'been there, done that' and no explanations are required on how we 
feel, because it is understood at the gut-level. When people complete 
your sentences with your own words, you know they understand. I do hope 
others will find the excellent people connections which I have found 
through the years.

Sorry for this Dennis, but there is no funding to pay for promotion, so 
the goodness of your heart/forebearance is appreciated.
Sandi


http://ovariancancerdebate.blogspot.com/

News Announcement
Survivors’ Debate: The Past Decade in Ovarian Cancer


August 21, 2007
Ovarian Cancer Survivors provide Patient-Led, Patient-Organized Public 
Conferences in U.S. and Canada

NOVI, MICHIGAN/TORONTO, ONTARIO, Aug. 21 / - Ovarian Cancer Survivors’ 
announce the first ever Patient-led conferences on October 27th and 
November 3rd, crossing borders between the U.S. and Canada.

Supported by cancer survivors and oncology nursing professionals, 
limited financial support has been available. Funding support has been 
provided primarily through individual ovarian cancer survivors.


Ovarian Cancer Debate: "The Past Decade in Ovarian Cancer"

WHAT:
Ovarian cancer survivors, Carolyn Benivegna (U.S.) and Sandi Pniauskas 
(Canada), announce the first-ever Ovarian Cancer Survivors’ Debate. Both 
conferences are survivor-led and survivor-organized with the debates and 
discussions surrounding the multitude of issues - the past and the 
present. Open and lively dialogue will be encouraged.

WHO SHOULD ATTEND:
All cancer survivors/caregivers, healthcare professionals, researchers, 
pharmacists, media and the public are encouraged to attend and participate.


WHERE/WHEN:

#1: Sheraton Hotel, Novi, MI Sat. Oct 27th, 2007

#2: Metropolitan Hotel, Toronto, ON Sat. Nov 3rd, 2007

Time: 10:00 am - 12:30 pm

BACKGROUND:

Ovarian cancer has the highest mortality rate of all gynecologic 
cancers. Ovarian cancer has no early detection test.


The debate and ensuing open forum public discussions will include the 
specifics of disease-related issues including genetics, access to care 
and communications. Debating the issues: Carolyn Benivegna, a nine-year 
ovarian cancer survivor/BRCA 1 carrier and Sandi Pniauskas, an 
eight-ovarian cancer survivor/Lynch Syndrome/Hereditary NonPolyposis 
Colorectal Cancer.

Ovarian cancer survivors Annamarie DeCarlo and Dr. Yi Pan, M.D. PhD, 
will co-moderate both events. Bridget Capo (R.N.) and Pamela J. West 
(R.N.) will provide support and collaborate with Benivegna and Pniauskas 
in formal publication of the event proceedings.


"Our community is very pleased to offer this exciting open public forum 
without cost to participants and we encourage active dialogue. We value 
our professional and family caregivers, but have seen the need, over 
years, for our community of cancer patients to have open discussions on 
the real issues that affect their lives. Today, and for the future. We 
need to appreciate the past, so that we may effectively bring attention 
to the sufferings experienced in our community. Most importantly we need 
to escalate change.” Benivegna/Pniauskas


Registration and public poll:

http://ovariancancerdebate.blogspot.com/

Further information:

Sandi Pniauskas (905) 668-0767, Sandi Pniauskas

~~~~~~~~~~

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