Excellent letter!  I look forward to tonight's
broadcast.  Christine

--- Sandi Pniauskas <[log in to unmask]> wrote:

> Sunday, March 5th, 2006
> Letter to the Editor:
> 
> > When I was first diagnosed, I called the Canadian
> Cancer Society to 
> > ask why there was no information about my cancer
> on their website. The 
> > response I received was that the focus was on
> 'healthy lifestyles' and 
> > my cancer cannot be attributed to lifestyle
> factors. Since 1999 
> > through the loss of family members and the extreme
> suffering of 
> > friends, I have 'railed' against the system for
> the benefit of others. 
> > This whole 'jouney' starts out as patients being
> 'good patients' but 
> > once we start seeing the cracks in the system we
> become an annoyance. 
> > Doors are closed, brick walls are in place and all
> for ego, politics 
> > and money. I have been lied to and about by the
> best of the best. I 
> > have asked significantly important questions and
> am ignored. I have 
> > asked for help for cancer patients and I have been
> ignored. At some 
> > point in cancer patients lives, those who do
> survive, it becomes a 
> > matter of beyond 'oneself'. What about the cancers
> who have low 
> > incidence rates but high mortality rates? The
> systems simply says, 
> > sorry, but we can't help you - at the time of
> diagnosis. This article 
> > and Wendy's program is a long time overdue but I
> also know from 
> > personal experience that it will only be able to
> cover the tip of the 
> > iceberg.
> > It is disgustingly enraging to know that some
> people just simply do 
> > not matter. More importantly, to understand what
> it is like to give 
> > Hope, knowing as an informed cancer patient, to
> spend each day trying 
> > to circumvent the 'system' in try to assist people
> to simply just 
> > survive. I am exhausted by trying.  Sandi
> Pniauskas
> 
> 
> 
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